It feels like forever ago since I last wrote the blog but here we are 7 weeks on and it’s been a mix of a wonderful start to Moffats, a decision to move house in the New Year and a month long trip to New Zealand planned over Christmas.
Daisy’s hair is making a comeback but her baby teeth have almost all come out at once; tooth fairy is poor. School has entirely changed family life, for a start we now have a routine again. I had no idea I missed having one but it’s clear we all needed it. She has made some great friends and the class is small so it’s all working well. There have been moments where kids have made the obvious remarks about her short hair, in and out of school, but Daisy’s tough as old boots and puts everyone in their place when needed. I have made myself available for anyone who needs a serious talking to but she doesn’t really need it.
It’s been difficult to switch off and let Daisy ‘go’ and get on with things. School remark regularly that she is very physical and full of energy. It is almost like having another child in that sense; before the illness she was often tired and was happy to go to bed early.
Daisy has done and English Speaking Board exam and chose Bob, our enormous rodent as the topic for her talk. She was so chuffed to take him into school and show him to her pals. He actually stayed overnight in a warm room! 5 star accommodation! We’ve renamed him Bob the Boarder. Daisy’s started horse riding again and seems keen to take it up at school. She loves the new sports and is obviously thriving in her new domain.
We had another 6 week check up at Shrewsbury and she’s gained a kilo in weight and her height ticks all their boxes. We had another MRI last week and we’re now waiting for the right result again.