Starlight Wish

The caravan’s finally finished and was officially opened by Starlight today. Daisy and her pals had a tea party to celebrate and they all helped add the finishing touches to the interior with transfers, stickers and more lights.  It’s a total success and has been fun to make happen for Daisy. Despite the pinkness it’s a vast improvement from when it arrived and we’re hoping she’ll share it; it’s very cosy! 

Image

 

Image

 

Image

Advertisements

August 24th

I’m aware now that blogging seems a bit pointless as there’s nothing medical to report but I now get texts, messages and emails asking for updates so for those of you who want to keep track of how Daisy’s doing  I’ve decided to carry on until the 12 month mark when we sincerely hope we’ll have a second all clear scan under our belt and she’ll be settled in at school.

Daisy’s energy levels are still very much on the up and apart from the odd lie-in she’s behaving like the average 7 year old. School is clearly much needed; vast amounts of discipline in particular! Weight is coming back along with hair. We’ve had lots of days out and spent the whole time outdoors as per Plan A. We’ve had a week of swimming lessons which she’s grinned throughout and wants to do nothing but be in a pool permanently.

.  Image

The caravan’s coming on and will be ready on Tuesday in time for Starlight’s Grand Opening. We’ve had a few weatherproofing issues but we’ve nearly achieved what she wished for.  Fidget helped with the painting yesterday and has painted herself in the process. After months away Alfie the Jack Russell is back from Hay House and Daisy is delighted.  He spends some of his time at Harry’s parents carrying out his role as Rat Manager and then comes back to his real home occasionally when he misses us. Sorry pics are all upside down; blog’s not brilliant!

Image 

Image

 

Back to hospital next Thursday for a check up then after a 2 year delay and an unbearably long countdown in sleeps, Daisy will finally get to visit London for the first time where she plans to blow all her Birthday money in Hamleys, get on the London Eye and go on the river. I then get left behind for a couple of sleeps to go to the Paralympics, get in the shops and do what I like when I like. Awful.