Wednesday 18th July

Daisy’s still doing amazingly well with piles of energy and blonde hair that is now 1cm long!  She had her first post-treatment MRI yesterday so obviously we want the right result from that.

Our holiday seems forever ago but there’s still loads to do; last day of home tuition today, Birdland on Friday with Grumpy and Grandma and a cinema party next week to celebrate her 7th Birthday. It’s also to say a massive thank you and goodbye to her amazing friends in Class 2  who haven’t stopped thinking about Daisy and sending cards and best wishes throughout the year. Daisy starts at Moffats in Kinlet from September but will still invite her friends to the new den / caravan – when it’s finished! We hope to arrange other get togethers during the holidays for all her other friends who’ve been so supportive and helped us along the way.  

We had some brilliant news this morning from a little girl we met in hospital who is still receiving treatment. Coincidentally, she is from Heathfield where Daisy previously went to school – and she also came to a horse party at our house last summer. Small world.  A tumour in her leg is responding extremely well to chemo and things are now looking far more positive with the operation due over the next few weeks. Another little girl we met has had her operation and apparently is making an excellent recovery.  Still being in the loop is a massive relief, hearing the updates, knowing how they feel and hopefully being able to send useful texts and emails to get them through it.  I now know how carfeful you have to be in conversation with someone who’s going ‘through it’. The sensitivity you feel to every word that comes your way means supposedly harmless comments and irritating pleasantries can be misconstrued and never forgotten. Get it wrong and you’re a dead man.

Despite being plunged into such a diabolical situation with people you don’t know where you have the obvious in common, living in close proximity, wandering about with dirty hair, drinking vast amounts of coffee, trying to become a medic overnight to get ahead of the game, I really think does have a positive element attached to it somewhere. The phrase ‘what doesn’t kill you makes you stronger’ is true.  The whole thing has turned me into someone else. Harry must be so relieved. Will ask him. 

So, when you sneak to Macdonalds for the burger you pretend you didn’t have and definitely never admit to, remember to put your change in the tray underneath the window where you pay. That goes some way to paying for the accommodation we’ve all been in at BCH while our kids get the operations that have saved their lives. Bit of an emotional blog today, sorry.  Am just so pleased we’re all on the mend.

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7 thoughts on “Wednesday 18th July

  1. Wonderful to hear you blogging like this and so looking forward to seeing you when we are back. Christian has been talking about you all. All our love Suz, rob and Christian. Xxx

  2. Such a wonderfully positive update. So pleased to hear Daisy is doing so well. And you a changes woman eh, had the work better watch out? Enjoy the summer and I hope Fidget is containing to grow well and cause mischief x x

  3. Great to hear things are on track, sounds like your hols did the trick. love to you all xxxx
    Will remember that when next in Mc Donald’s

  4. Greetings from our holidays. Thanks for that blog it s so uplifting. Can’t tell you how pleased/relieved/delighted I am that Daisy is on the mend. Love you guys xxx As soon as we are back come and see us for a play/swim (hoping we get some summer weather?!) Love Auntie Claire ps we loved Daisy the beagle!

  5. Aw! Fingers crossed for MRI results and just cannot imagine the relief and fear you have been through and your empathy for those that continue the journey must be so great. A changed woman indeed! Someone I know once said “I never thought I would have to be this grown up”. I think might be a similar feeling
    A new school sounds very exciting in September but some happy summer day in between I hope!

    Love to you all

    Vic & Chris xx

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