The surgeons said Daisy coped very well throughout and the outcome was the best they could have hoped for. It was, after all, encapsulated so they’ve got it all out with minimum margin. Only the head of the pancreas was removed so she will not be diabetic. The spleen is untouched and the remaining parts of the Whipples procedure they carried out as planned which means some of the stomach, the lower part of the bile duct and the gall bladder have been removed. They found the tumour had made an impression on the vein so we know Harry’s persistence for more chemo before the op has made a huge difference to the outcome.
Daisy is going through an unbelievable experience at the moment and yesterday was as joyous as it was frightening. The day consisted of starting the day having ‘slept’ in my clothes followed by taking Daisy and ipod to theatre, tollerating Harry’s tantrums in the shops at the Bullring (cost of things wounds him), finding some serenity in the pub with Aunty Claire and Dawn only to be thrown back into panic mode by a call from the hospital asking us to speak to the surgeons. They said it was likely to be a 10 hour op and it’d only been 4. Another vile experience of being ‘put’ in a room while we waited for them and then total relief came after a short conversation. This was quickly followed by an hour in the recovery room which was ghastly. Unless you’re a medic there’s no way of knowing what to expect but I knew it was the moment I’d dreaded most in this whole process. Now it’s over that’s the last time I’ll say it and will endeavour to forget it.
Once again, Daisy has understood and accepted everthing said and done to her. We have the rest of a really difficult week to get through for many reasons but as we stand at the moment things are looking incredibly positive. Harry, has read books leant over Daisy’s bed and we’ve been doing everything we possibly can to make her more comfortable. When she woke up she asked for spaghetti but that’s a few sleeps away yet.
Unexpectedly we’ve been allocated a room at the Ronald Mcdonald house next to the hospital which is already making our time here so much more bearable. Getting sleep – in a bed – is utter luxury. The facilities are superb. 2 Happy Meals this week, and they won’t be the last, have paid for some of it so I’m happy with that.
We’re swapping shifts now. If anyone wants to visit us, Daisy or our flash hotel we’ll be happy.